From diatribe.org
Key takeaways:
- Most women with diabetes today can look forward to a healthy pregnancy, even though managing diabetes during this time takes extra effort and support.
- The right team, early planning, and diabetes technology can make pregnancy safer and more manageable, no matter what type of diabetes.
- Diabetes technology can ease some of the burden, but insurance gaps and limited access – especially for people with type 2 diabetes – remain a barrier.
Advances in diabetes care and technology have helped improve pregnancy outcomes for people with diabetes, even as managing diabetes during pregnancy introduces specific new challenges.
In a recent diaTribe online event, experts shared practical and personal insights into navigating pregnancy with diabetes today and highlighted the gaps that still remain.
The panel was moderated by Julie Keller Heverly, Vice President of the Time in Range Coalition and Patient Advocacy at diaTribe. Panelists included:
- Dr. Celeste Durnwald, professor of obstetrics and gynaecology at the University of Pennsylvania and director of the Perinatal Diabetes Program at Penn Medicine
- Dr. Sarit Polsky, associate professor of medicine and paediatrics at the University of Colorado and director of the Pregnancy and Women's Health Clinic at the Barbara Davis Center for Diabetes
- Katie Larson, certified diabetes care and education specialist, who lives with type 1 diabetes and has two children under 2
- Jacquean Kosh, licensed clinical professional counsellor living with type 2 diabetes and mother of two children
To help people with diabetes navigate pregnancy, diaTribe brought together experts from six continents to develop a new consensus statement on the use of diabetes technology. The statement offers clear, up-to-date guidance to improve outcomes and ease the burden of managing diabetes during pregnancy.
“We were incredibly fortunate to have the support and endorsement of 25 organizations that we convened in this historic consensus effort," Heverly said. "It details 14 recommendations that our global experts really felt would help people with diabetes."
Heverly also reflected on her own pregnancy and how long it took to find a healthcare team that supported her goals.
“I finally found one that heard me and validated and stepped into the process to join me to achieve this goal,” she said. “And I sought a community of other people with diabetes, who were moms and who had navigated these waters before me, and it helped me visualize my journey.”
Dr. Durnwald acknowledged some of the specific challenges of pregnancy with diabetes, while at the same time navigating typical concerns like nausea and fatigue. There's added work, tighter glucose targets and closer monitoring, more appointments, additional ultrasounds – and she agreed it requires a collaborative team. But she emphasized how planning, communication, and technology have greatly improved outcomes.
"The vast majority of times we are very successful in helping guide patients through pregnancy and having a healthy mom and infant afterward," Durnwald said.
Managing different types of diabetes during pregnancy
Dr. Polsky explained that while monitoring glucose is key across all forms of diabetes, different types of diabetes have specific challenges. For people with gestational diabetes, it often means learning how to manage diabetes for the first time. For people with type 1 or type 2, pregnancy often requires changes to their existing care as the pregnancy progresses. And for some with type 2, that may mean starting insulin for the first time.
Polsky stressed the importance of support from a care team that may include a diabetes provider, diabetes care and education specialist, registered dietitian, maternal-fetal medicine specialist, eye specialist, and, depending on the situation, neonatologist or kidney specialist.
“While there's a lot that's involved, you don't have to do these things alone," she said. "We are here to help you – and know that there are other people out there who have experienced what you're experiencing."
Personal takes: planning, pushback, and building the right team
Jacquean Kosh and Katie Larson shared two very different experiences with diabetes and pregnancy. At a pre-pregnancy check-up, Kosh was told not only that diabetes management would add complexity to the pregnancy, but that she should reconsider having a baby altogether.
"I'm not the type of person who gets told she can't do something and handles it well," she said.
Oral medications weren't sufficient to help her reach the tighter target ranges recommended during pregnancy, and she wondered why she wasn't being prescribed insulin. A referral to an endocrinologist led to a prescription for long-acting insulin, and the results surprised her.
"I got my A1C in a comfortable range where my endo said, ‘Go for it.’"
Larson, a diabetes educator living with type 1, had a very different experience. She benefited from the expertise of the Barbara Davis Center for Diabetes, where she worked, but as she planned to conceive, she wanted a team close to home to guide her through the process.
"I think sometimes, living with diabetes, I like to figure out things myself, but I knew this was a time to outsource that, because it truly is a second job – the number of appointments that you have and all the things that you have to do."
She asked providers how they worked with pregnant patients with diabetes, how many people they had helped through the process, and whether they would support her active lifestyle. She also readied herself for stigmatizing questions ("Aren't you going to have a big baby?") and misconceptions about pregnancy with diabetes.
"Mentally, it was a preparation as well, knowing some of this stuff was going to come my way," she said. "How do I protect my belief in myself – and this unit I'm about to create. And so I think that was a huge beginning step for me as well."
Tighter targets, but not perfection
Durnwald explained that tighter recommended glucose goals matter in pregnancy, for the development of the baby, and to reduce risks for the mother. That said, progress and rapid improvement matter too, especially if someone is already finding non-pregnancy target ranges challenging.
Durnwald highlighted goals for glucose management:
- A1C goal of 6.5% or lower in the first trimester (7% or lower before conception and under 6% in the second and third trimesters is also recommended)
- CGM pregnancy time in range (TIRp) described as 63-140 mg/dL
- TIRp of 70% for type 1 diabetes
- TIRp of 80% for type 2 diabetes
- For gestational diabetes, aiming for 90% TIRp
“We know how challenging it is to achieve those targets," acknowledged Durnwald. "It can be very rough in that first trimester with nausea, highs, lows – so we try not to focus on that being a discouraging part. If you're not at those ranges, a 5% increase in time within the pregnancy range makes a big difference."
Trimester changes
Polsky offered an overview of changes to diabetes management that can be expected as the pregnancy progresses.
In the first trimester, there's often more insulin sensitivity, which leads to dose reductions. Around 14 to 20 weeks, rising insulin resistance can lead to sharply increased insulin needs, she said, due to hormones that help ensure a steady supply of glucose as a form of energy to help the baby grow and develop. Those changes require close monitoring and may need week-by-week adjustments. She also illustrated how dramatic those changes can be.
“Some people may require 20-30% less insulin in the first trimester compared to their pre-pregnancy doses if they were on it before pregnancy," she said. "And they may require 200-300% more insulin by the time that they deliver the baby. Everybody reacts differently.”
She also said overall health beyond glucose is important to monitor, including blood pressure and, in some cases, cholesterol. Polsky added that people should be prepared for significant fluctuations and reach out when needed so their healthcare team can offer treatment guidance and dose adjustments.
Tech for pregnancy: CGM, AID, and access
The experts stressed the importance of using continuous glucose monitoring (CGM) in pregnancy. And while technology like automated insulin delivery (AID) and CGM can make glucose management less difficult, access can be uneven, especially for people with type 2.
“The use of the CGM increases the amount of time that the mom spends in that optimal pregnancy time in range," Polsky said. "And by doing that, it reduces the risk to the baby's health. It really can make a difference in helping people understand where their glucose is going and what adjustments need to be made.”
For those who want to explore diabetes technology to assist with their pregnancy, Polsky suggested starting a conversation with their provider. “The first thing is to just talk openly and honestly and say, ‘I've heard about this device, and I haven't been started on it – what do you think?’”
Larson used an AID system to manage blood sugar during her pregnancy and prepare for the tighter recommended goals (65-140 mg/dL).
"I started on a hybrid closed loop system and CGM pre-emptively, knowing I was going to try to get pregnant," Larson said. "I really lived in that range. That helped me when I did get pregnant, because it wasn't this sudden switch.”
In contrast, Kosh said as a person with type 2 diabetes, she felt left out knowing helpful technology was available but wasn't prescribed for her (she now uses an AID system and CGM with a remote following app that her husband monitors). But during her pregnancy, she had a severe low blood sugar when her husband wasn't home and her son was sleeping.
"Because of my label, I was not getting access to tools that I knew would work, and it would have saved me from a scary low," she said. "It just made me feel very vulnerable, feeling like I was denied that access solely because I'm type 2. That's not a great feeling.”
Durnwald made the point that some insurance plans don't cover CGM for all diabetes types. That said, Medicare, which influences coverage standards across private insurance, covers CGM systems for people with diabetes who use insulin, including people with type 2, as well as some people who have problems with low blood sugar. Medicare policy can also influence coverage standards across private insurance.
"These devices are costly. It's important for healthcare providers to advocate for better coverage. And for those living with diabetes, just keep pushing on the advocacy route. Everybody – if they choose and after discussions with their providers – should have the same equal access to diabetes technology," she said.
The need for pregnancy tech
Heverly noted limited options for AID systems designed to handle menstruation and pregnancy, where automation could assist with changing insulin needs. Tandem’s Control-IQ+ AID system was just recently approved for use during pregnancy with type 1, making the t:slim X2 and Mobi the first FDA-cleared systems available for use in the U.S.
Polsky acknowledged the issue and said it requires the support of the research community, regulatory agencies, and manufacturers. But she said momentum is finally building, with randomized trials now published.
She discussed how the study of AID use in people who are pregnant and have diabetes is increasing, after more than a decade of gradual progress, which could help lead to devices that better meet their needs.
"It takes all of our voices to push the field forward. I do feel like there's a little momentum now, and we as a community can step forward and push it toward the future even more," she said.
Looking forward
The panel offered practical tips for those who are pregnant with diabetes and those considering next steps. A common theme emerged: that while challenges are real, there is support and guidance available that can benefit people with diabetes in having a healthy pregnancy.
"We would love to talk with you ahead of time so that we can plan for a pregnancy together and start to develop our collaborative relationship," Durnwald said. "We acknowledge the hard work that it takes, but we are here to support you.”
Polsky offered this advice if the pregnancy isn't planned, since many are not: "Don't panic. Try to get into the healthcare system as soon as you can – and know that you're not alone. It's a vulnerable time, it's stressful, it's challenging, but it also can be a really special and beautiful time.”
If a healthcare provider isn't supportive, Kosh recommended pushing back. "It's the story of my entire health life," she said. "I've been told numerous times regarding what I can and cannot do for my health. I have two children, and I was told I couldn't. So you don't have to take that first no.”
The panellists also encouraged people with diabetes to give themselves a bit of grace. Larson, who now has two children, spoke about how the experience of her first pregnancy allowed space for her own mental health with her second.
"Living with type 1 diabetes, I was able to put so much less emphasis on it – and take that stress away. You are meant to do this, if you want to, and to enjoy it, because then there's this life after, which is so amazing,” she said.
https://diatribe.org/diabetes-management/planning-pregnancy-diabetes-hope-support-and-smart-tools


