From diatribe.org
Janelle Tobias Sanderson shares her personal experiences and strategies for navigating college with type 1 diabetes
College is an exciting time when you grow into your identity and get to decide what type of person you want to be. As I enter my thirties and reflect on my university experience, there is plenty of advice on type 1 diabetes I wish I had embraced earlier in life. Entering college as a person living with type 1 can be challenging, but it is possible and manageable.
When I started college in 2014, I showed up to my freshman dorm room with a purple Medtronic pump and blood glucose meter. For the first two years of undergrad, I did not have a continuous glucose monitor (CGM), so I typically checked my blood sugar in the morning and before bed. Unless I felt clearly off, I did not check that often.
In high school I often hid my diabetes, but moving to a new city without my family nearby, I knew that I would have to make a greater effort to share this part of myself. I was nervous to tell my roommate, an initial stranger, about my chronic condition. However, she was very kind and quickly became a great friend who helped make sure we always had juice in the room. Even though I didn’t want to, I wore a medical bracelet, and while many of my friends knew I had diabetes, I never fully shared what that meant in terms of symptoms or how to help beyond having access to sugar.
I was diagnosed at 13, so my mom would go to every doctor’s appointment with me. I tried switching to an endocrinologist who was closer to my university, but finding an endo as an adult was my first experience going to the doctor alone. I didn’t know what questions to ask or how to advocate for myself. I struggled to find a local doctor with whom I connected, and because I loved my hometown provider, I ultimately scheduled my endocrinology appointments for when I came home in between quarters. This meant I went to the doctor every four months instead of every three months.
In my last endo appointment before starting school, my provider wanted to ‘prepare me’ for college and spoke to me about living with type 1 diabetes, drinking alcohol, and substance use. She told me to beware of overnight lows after drinking, and that if I did any drugs, it would eventually lead to amputation due to poor circulation. She was quite intense, and I left this conversation absolutely terrified. Her fear tactic worked for me, but I felt this burden at 17 that my decisions as a teen could deeply affect my quality of life years from now.
In high school, I had structured days with consistent meals and movement, walking from class to class throughout the day. In college, you decide your own schedule, and I had no routine. I ate whenever it was convenient, rarely checked my sugar or gave correction boluses, and my sleeping schedule was terrible. It wouldn’t be until I went to my endo appointments, where my A1C would continue to rise, that I would learn my management was not ideal, and it felt like a personal failure.
If you’re living with type 1 diabetes and going to college for the first time, here are some of the most valuable lessons I learned from my college experience.
Ask for help
Managing type 1 diabetes is a full-time job. When you are also a full-time student and involved in extracurricular activities or working a part-time job, it can be easy to focus less on taking care of your health. I never asked for help, and I felt isolated. It is hard to be a productive student when your blood sugar is stuck high or crashing down. Help might look like asking a family member or close friend to follow you on your CGM app, or restocking your snack drawer so you always have easy access to carbs. I find that people are often willing to help if you are able to ask.
Finding community
Most people you meet in college won’t know about diabetes unless they know someone living with it. I was very insecure about having type 1, and refused to join support groups or connect with others who had diabetes. This resistance made me suffer alone and made my diabetes feel like a burden that only I could carry. My friends from college, whom I am still close with today, are the ones I felt comfortable being open with about diabetes. In grad school, I even had a roommate who also had type 1, and it was amazing living with someone who truly understood my lived experience.
Having a routine
Not every day has to look the same, but having a general plan for regular meals and exercise can help make overall diabetes management less burdensome. When I eat meals at similar times, my blood sugar is more predictable and easier to manage. This is not always possible, and that’s ok, but having easy sugar (fruit snack packets are my go-to option) and protein bars available can help when you have a busy class schedule.
Alcohol use
It is possible to drink alcohol while having diabetes. However, be aware that alcohol can change your awareness or ability to manage your diabetes. Make sure to eat before drinking and have low snacks by your bed in case of night-time lows. If you choose to go to a party and drink, make sure you go with a trusted buddy who is aware that you have diabetes.
Learn about health insurance early
Even though I had access to a student health insurance plan, the coverage was not good, and I decided to stay on my parents’ insurance until I was 26. I have an incredible mother who handled all of the calls to the pharmacy and insurance on my behalf. It wasn’t until I was in grad school and finally on my own insurance that I realized I did not fully understand prior authorizations. It would have been helpful to learn more about the amount of paperwork and phone calls needed to re-order the supplies I relied on to survive.
How diabetes tech can help
Towards the end of my second year, I finally got a CGM, the Dexcom G5. At the same time, I switched from Medtronic to Omnipod and fell in love with wearing a tubeless pump. Having the right diabetes technology that worked for me gave me a greater sense of independence and agency over my health. After undergrad, I went straight to graduate school and decided I wanted to live by myself. I used to think this was not safe, but empowered by a pump and CGM that worked for me, I found a studio and lived alone for two years.
The bottom line
College is an exciting time where you get to meet new people, learn a lot, make mistakes, and grow as an individual. For many people with type 1, it is their first time taking care of their diabetes without their family’s daily support.
Allow yourself some grace as you balance schoolwork with being your own pancreas, and ask for help if you need it. I spent my high school years resenting diabetes, and in college I grew to accept my diagnosis. All of the highs and lows helped me gain confidence in managing my type 1 independently.
https://diatribe.org/diabetes-management/navigating-type-1-diabetes-away-home


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